Now, what I wasn't expecting to find out from Dr. Sacks was the last thing Sebastian said....
Apparently, the attending who was at Sebastian's side when they wheeled him to the OR told Dr. Sacks that Sebastian had been nervous and restless as they went into the OR, then looked at her and said, "I just want to close my eyes and rest." Then he calmed and laid still as they put in the IV and gave him the sedation meds.
Sebastian was ready to be done with all the pain and struggle and wanted to go peacefully in a way that he knew his mommy and daddy couldn't blame each other for or feel guilty about in any way. He also knew how much his mommy hated blood and knew I would insist on going into the OR, so he went before they started the surgery to spare me from seeing more than I should.
I love and miss him so much and am grateful that he left this last message of peace for me.
Love and hugs, Liz.
ReplyDeleteHes in a better place now sis. im so glad docs had mentioned this to you, more at ease. XoXO lots of them from hawaii.
ReplyDeleteYou are such a strong woman Liz, as parents of chronically ill children we live with fear, you have handled this with such grace, upholding the exact meaning of strength. Sebastian knew you could handle being without him no matter how hard it is, he's telling you mommy I am ok now, don't worry. He was so blessed to have you as his mommy. You are so beautiful and poised with being a special needs mommy. The toughest job we have. You never failed him, you always succeeded, and he proved that ❤️ -India
ReplyDeleteIn his young year he seems to been so wise and loved beyond words loved you in the best way you could ever have. I love you and want to say thank you for sharing his story your story. Hugs liz...
ReplyDeleteIn his young year he seems to been so wise and loved beyond words loved you in the best way you could ever have. I love you and want to say thank you for sharing his story your story. Hugs liz...
ReplyDeleteSebastian always had this mystic look in his eyes. So wise and lovable. He knew you needed to be reassured that he was ready to part, so he left you a little message. I am ao glad he did, because even though the pain of loosing him will always be there. You now know it was his choice to be in a place of no pain and suffering. When Genesis went to be with the Lord, she had already beed in the verge of leaving us a few times. Those times Roberto would beg her to fight. He would tell her she waa strong and could fight. She would have amazing come backs that would fill us with hope. The last time she had a crisis, Roberto sat at her bedside and told her he loved her. He let her know he wouldn't be mad if she didn't feel like fighting anymore. He was going to take the rest of the time we had with her off from work. The fist day he took off, she died peacefully in my arms. They will not leave us unless we are ready. Sebastian knew your love for him was not selfish, and he went with Papa God at peace. Hang in there sweety, and if you need anything I am here for you.-Mayra❤
ReplyDeleteSebastian always had this mystic look in his eyes. So wise and lovable. He knew you needed to be reassured that he was ready to part, so he left you a little message. I am ao glad he did, because even though the pain of loosing him will always be there. You now know it was his choice to be in a place of no pain and suffering. When Genesis went to be with the Lord, she had already beed in the verge of leaving us a few times. Those times Roberto would beg her to fight. He would tell her she waa strong and could fight. She would have amazing come backs that would fill us with hope. The last time she had a crisis, Roberto sat at her bedside and told her he loved her. He let her know he wouldn't be mad if she didn't feel like fighting anymore. He was going to take the rest of the time we had with her off from work. The fist day he took off, she died peacefully in my arms. They will not leave us unless we are ready. Sebastian knew your love for him was not selfish, and he went with Papa God at peace. Hang in there sweety, and if you need anything I am here for you.-Mayra❤
ReplyDeleteHe was amazing and strong little boy. It was an honor to know him. My thoughts and prayers goes to you and Grey right now. Words can't say how sorry I am for your loss.
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